Wednesday, November 11, 2009

Clueless

Bad News, we got some scan results yesterday from the Friday CT and found out that the pain in my hip is probably increasing because the tumors are growing and there are more and larger tumors in my lungs as well. That is a partial report that Pam (my pain specialist) read to me because I do not have an appointment to see the doc to discuss it. I am still waiting to see what the doc's office has to say about it. My thoughts are that the recent radiation didn't help a lot, if at all, maybe they knocked the growth back some, but  not enough to outpace growth. This is actually news we sort of expected because of the way my body reacted when I had radiation.

Good News, it looks like my liver is still clean. Same for kidneys. Despite the gravity of the situation I am still in pretty good spirits. No point in tears and sadness, right?

Just News, I was unable to have chemo again on Monday. Platelets were too low. I gave myself three Neupogen shots so my white blood cells would not prevent that from happening again.

I have no idea what do to next or where to go from here. Is there something out there in the universe telling me that Gemzar or Avastin are not right for me?

5 comments:

  1. Cj,

    How about trying Votrient? That is what Pam and I are trying to do next.

    ReplyDelete
  2. my sister fought LMS for almost two years.She went in for a routine hysterectomy and the fibroid was malignant. I so wish they would do more research on this. Do you mind me asking where you are being treated? Will keep you in my prayers.

    ReplyDelete
  3. No tears and sadness for you, Carole my love. They would just waste your time and energy which you need for other projects.
    Love Laurie

    PS.
    Still thinking about something for Scott ..... is there a live show he would like to see?? You could send him off in a limo!

    ReplyDelete
  4. This is CJ Anonymous since it will not seem to let me comment otherwise.

    Amy & Pame, I am reading about Votrient and thinking about asking when I have my next chemo on the 30th. Thanks to both of you.

    Anonymous reader, check out my journal pages for that information and much more. http://e-cj.home.comcast.net/LMS-J.html

    Laurie, You are right as usual my friend. I suspect that a surprise like that one and Scott would not want to do it alone so he'd take me anyway. He is a saint of very simple needs.

    ReplyDelete
  5. Carole!
    This is Kappy. Just read all you've written here. Please keep writing! I will keep reading! And I will keep praying...Love you, sis-in-law.

    ReplyDelete